Receive HAE Genetic Counseling

Talk to a genetic counselor to learn more about HAE and its impact to you and your family

If you’ve been recently diagnosed or suspect you may have hereditary angioedema (HAE), you may be wondering how this disease will impact you and your family. With a disease as rare as HAE, we know it can be difficult to get answers. That’s why we (Dyax Corp.) have partnered with InformedDNA, an independent organization that provides genetics expertise to patients and families, to offer a free genetic counseling service for eligible* patients.

Register for free genetic counseling

Our free genetic counseling program is available for both diagnosed and undiagnosed HAE patients and their families. To sign up, fill out the form below or call 1-855-HAEHope (1-855-423-4673) to schedule a one-hour call with a medically trained HAE genetic counselor.

During your appointment, you can expect:

  • review of family history to assess the possibility of whether any of your family members may have HAE
  • Information about biochemical and genetic testing, including interpretation of test results and assessment to determine if additional testing may be needed
  • Education about different treatment options, and ways to remove barriers to treatment
  • Discussion of the emotional impact of having HAE and resources available to help you cope

Once you register to receive genetic counseling, a counseling service coordinator will contact you to schedule a session.

*Persons enrolled in any government health care program, such as Medicare, Medicaid, or Tricare, and persons residing in the Commonwealth of Massachusetts, Minnesota, Rhode Island, or Michigan are not eligible to participate in Dyax's genetic counseling program. If you are not eligible, Foundation Assistance may be available. Please call 1-855-HAEHope (1-855-423-4673) to learn more.

*=required

Please Create Your HAE Hope Profile

Your Contact Information

By signing up for genetic counseling services I agree to share my personal information with Dyax Corp. I consent to being contacted by mail, email, and/or telephone by Dyax and companies working with it to ask me about my experiences with, or thoughts about, products, services, and programs that Dyax offers or sponsors.

Dyax respects your privacy. Dyax will not sell, loan, trade or otherwise disseminate any personally identifiable information or health related personal information that we collect.

Please read our privacy policy for more information.