Be Prepared

Don't let HAE hold you back - use these tips to be prepared and better manage your condition

Hereditary angioedema (HAE) can take a severe toll on you both physically and emotionally. But one way to help manage the stress and strain of HAE is to be as prepared as possible. Follow our attack preparation checklist to stay on top of your disease and manage HAE with confidence.

Prepare for your HAE attacks

  • Understand your triggers. Use a notebook or the HAE Attack Tracker® app to document the location, frequency, and any recognizable patterns of your HAE attacks. Once you know what your triggers are, try to avoid them whenever possible.
  • Recognize warning signs of an HAE attack. Signs of an attack may include a painless, non-itchy rash and/or a tingling or sensation of tightness in the skin. Some patients report fatigue or irritability before an attack. Ask your loved ones if they have noticed any differences in your behavior before an attack and note those changes.
  • Know what to do when an attack occurs. It’s important to have a plan in place when a sudden HAE attack occurs so you can get treated whether you are at home, at work, or anywhere else. When traveling, make sure you know where the nearest medical emergency facility is located. It’s also important to always have an HAE wallet card or a letter from your physician on hand that identifies you as someone with HAE in case you are unable to speak during an attack.
  • Get help from your loved ones. Caregivers play a huge role in helping patients manage HAE and are a great source of information and support. Bring them to your doctor’s appointments and HAE educational programs so they can be informed advocates for you.
  • Use support programs offered by your treatment provider. You don’t need manage HAE on your own. Talk to your HAE treatment provider to find out how they can help remove barriers to treatment, assist with financial burdens or insurance issues, and provide resources to educate your community about HAE.
  • Involve and educate the local medical community. The more people who understand HAE and how to treat it, the better care you can receive. Talk to your dentist, pharmacist, local emergency responders, and people you spend time with to help them understand what HAE is, and help them recognize the signs of an attack.
  • Stay on top of HAE news.  Google News Alerts are one way to keep up with the latest research and treatment advancements for HAE. Create an alert for “hereditary angioedema” to receive email updates whenever relevant news is published.
  • Join an HAE community. There are many HAE communities  that have message boards and forums where you can connect with patients and caregivers and learn how they manage HAE.

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