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ACE Inhibitor
Class of medicines used to treat high blood pressure and other diseases.
Activating factor
A functioning plasma protein that works in the coagulation pathway to help form a clot.
Anabolic steroid
Also referred to as attenuated androgen, a class of steroid hormones used to prevent HAE attacks. Although their mechanism of action in HAE patients is unknown, these agents are believed to partially reverse the biochemical defect by increasing levels of C1-esterase inhibitor (C1-INH), helping to prevent angioedema attacks in patients with inherited C1-INH deficiency.
Antifibrolytic agent
Medicines used to prevent HAE attacks. These agents inhibit the activation of plasmin, a chemical in the blood that can make the C1-INH less effective.
Attenuated androgen
Also referred to as anabolic steroid, a class of steroid hormones used to prevent HAE attacks. Although their mechanism of action in HAE patients is unknown, these agents are believed to partially reverse the biochemical defect by increasing levels of C1-esterase inhibitor (C1-INH), helping to prevent angioedema attacks in patients with inherited C1-INH deficiency.
Bradykinin
A protein, which when released, causes blood vessels to expand (dilate) and leak fluid, such as serum, into surrounding tissue.
C1 inhibitor
Also referred to as C1-INH, a protein found in the fluid part of your blood that controls C1, a component of your body's complement system. Abnormal swelling can result when C1-INH is insufficient or defective.
C1-INH
Also referred to as C1 inhibitor, a protein found in the fluid part of your blood that controls C1, a component of your body's complement system. Abnormal swelling can result when C1-INH is insufficient or defective.
Cleave
To cut; to split
Coagulation pathway
A process in which blood cells work together to form a clot.
Complement system
The complement system is made up of proteins like C1 that float in your bloodstream, which work with the immune system to fight organisms like bacteria, viruses and parasites.
Drug formulary
A list of prescription medications selected for coverage under a health insurance plan.
Edema
Swelling caused by an excessive amount of fluid in the body tissues.
Endothelial cells
A thin layer of cells that line the surface of blood vessels.
Enzyme
A protein that changes the rate of chemical reactions in the body.
HAE
HAE, or Hereditary Angioedema, is a rare, hereditary disease of the immune system that affects an estimated 1 in 10,000 to 1 in 50,000 adults and children globally. HAE causes attacks of spontaneous swelling that are often painful and severe, and can be life-threatening.
Hereditary Angioedema
A rare, hereditary disease of the immune system that affects an estimated 1 in 10,000 to 1 in 50,000 adults and children globally. Hereditary Angioedema (HAE) causes attacks of spontaneous swelling that are often painful and severe, and can be life-threatening.
High-molecular-weight kininogen
HMWK, a protein that acts on the inflammation and coagulation processes; inactive until it is cleaved by kallikrein and in turn, releases bradykinin.
Hypotension
Low blood pressure.
Inflammatory pathway
A process in which the body responds to an injury either inside or outside of the body.
Inhibitor
That which reduces, prevents or stops; i.e. a substance that stops enzyme activity.
Kallikrein–kinin system
A system of proteins in the blood that has a role in the inflammatory pathway; through this system, bradykinin is released.
Kinin
A protein that is a component of the kallikrein-kinin system.
Laryngeal attack
An HAE attack that affects the larynx (throat); this can block or close the airway, leading to difficulty breathing and, potentially, death.
Liberate
To release
Plasma kallikrein
An enzyme present in blood plasma, urine and tissue; responsible for cleaving high-molecular-weight kininogen (HMWK), which then releases bradykinin.
Prekallikrein
Precursor to kallikrein; inactive until it cleaved by activated factor (specifically, activated factor XII) to generate active kallikrein.
Preventive therapy
In HAE, medicine taken to prevent attacks.
Prodrome
One or more physical warnings of an HAE attack; can appear as a rash or a feeling of skin tightness.
Protease
An enzyme that breaks proteins down into a simpler form.
Proteolytic cascade
A step-by-step process in which proteins are broken down into simpler forms.
Receptor
A component in a cell that can combine with a drug or a chemical in the body (i.e. hormone) to change the function of the cell.
Serum
The clear, watery, fluid-component of blood that resembles fluid in a blister.
Subcutaneous
Beneath the skin.
Substrate
A molecule or substance acted upon by an enzyme.
Trigger
In HAE, something that causes an attack. Stress and trauma are two common HAE attack triggers.
Vascular permeability
The capacity of blood vessels to allow fluids or molecules to pass in and out of the vessel.
Vasodilator
A substance that opens, or dilates, blood vessels; e.g. bradykinin and nitric oxide.
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Privacy Policy


This Policy applies to residents of the United States.

At Dyax Corp., we are committed to respecting your privacy. We understand that facts about a person's demographic, health, health interests, and health care are private and sensitive, and we know that you may have concerns about sharing information with us. This Privacy Policy is designed to answer your important questions about privacy and how we use the information you provide to us, and how we protect this information from unauthorized use or disclosure.

Why does Dyax need personal information?
As part of its overall mission, Dyax endeavors to understand the specific needs and preferences of individuals. We use personal information to identify these needs and preferences in order to help us design the informational, educational and support services for you.

What type of information does Dyax collect?
We only collect information that you voluntarily provide to us. If you choose to participate in certain programs and activities conducted by Dyax, we may collect "personally identifiable information" from you, such as your name, address, telephone number, and email address that could be used to contact you. When this information is combined with any information on your health or medical status (pursuant to all applicable laws), we refer to the resulting information as "health-related personal information." You may choose at any time not to provide personally identifiable information or health-related personal information, although this may restrict your ability to participate in certain programs and activities conducted by Dyax, as well as to provide requested services or information. The following are examples of when we may request personally identifiable information and/or health-related personal information that you may voluntarily provide to us and how we use it.

  • Registration: If you complete a registration form that we e-mail to you or that you obtain from our Website, we will use the personally identifiable information and/or health-related personal information in such forms to process your request for services and information. Personally identifiable information and health-related personal information may also be used if you request to receive certain information from Dyax. We may use this information to send you a welcome email; to verify your username and password; to provide information about Website updates, special offers; and to provide other responsive information to the data you share with us. Additionally, we may refer to your personally identifiable information to better understand your needs and create customized offers, information, and services tailored to your interests and preferences.
  • Questionnaires and Surveys: From time to time, we may establish certain interactive services, such as health questionnaires and care management tools that ask you to furnish health-related personal information about you or your family. If you choose to participate in our interactive services, we will collect the information you may choose to disclose and analyze it to discover new facts that could help us better understand how our products are used in coping with the diseases for which they are marketed. In certain circumstances, we may also combine your health-related personal information with health-related personal information obtained from others to create summary data, but in such cases we will continue to treat such summary data in a manner consistent with this Privacy Policy.
  • Notifications and Newsletters: We may use information obtained from you, such as contact information (name and email address), to complete your submitted request to receive specific company information, such as e-mail notifications, literature requests, and newsletter subscriptions.
  • Information for Referrals: If you elect to use our referral services and provide information for us to contact a family member or friend, we may use the personally identifiable information obtained from you regarding your family member or friend to send them a one-time request inviting them to visit our Website or otherwise contact us for further information. Personally identifiable information provided by you may also be used to inform the recipient of your name. We may store this information for the purpose of sending this invitation.

Dyax maintains voluntarily provided personally identifiable information and health-related personal information in an electronic database. By voluntarily providing such information to us, you are hereby consenting to the use of such information by Dyax in a manner consistent with this Privacy Policy.

In addition to personally identifiable information and health-related personal information that you voluntarily provide to us, we may collect the following additional information from anyone who visits our Website through the internet. 

  • IP Address: We record the Internet Protocol (IP) address of your computer when you visit our site. The IP address does not identify you personally, but it does allow us to maintain communications with you as you move about our site.
  • Cookies: We also collect information about your use of our site through cookies and similar technology. A "cookie" is a unique numeric code that we transfer to your computer so that we can keep track of your interests and preferences and recognize you as a return visitor to our site. Cookie technology allows us to collect certain data which reflects your activities on the site, including your interest in certain health care conditions. A cookie does not collect or keep your name or other personal identifying information, but when you revisit our site the cookie allows us to bring you the content and features likely to be of greatest interest to you based on your previous activities on our site.

How will Dyax protect my personal information?
To prevent unauthorized access and ensure proper use of your personally identifiable information and health-related personal information, Dyax employs appropriate physical, electronic, and managerial procedures to safeguard and secure the information we collect. Furthermore, all personally identifiable information and health-related personal information we obtain is retained for no longer than is necessary, depending on the purpose for which it is held.

Will Dyax share my personal information with others?
Dyax will only share your personally identifiable information and/or health-related personal information with individuals or organizations with whom we are working to develop or deliver products or services. We require any organization to which we provide such personally identifiable information to keep your personally identifiable information confidential in accordance with this Privacy Policy.

We may also disclose your personally identifiable information and/or health-related personal information if we reasonably believe we are required to do so by law, regulation or other government authority (such as reporting safety information to the Food and Drug Administration). We may disclose or be required to disclose personally identifiable information and/or health-related personal information in the event our company is merged or acquired to the merger or acquiring entity.

We do not sell, loan, trade, lease or otherwise disseminate any personally identifiable information or health-related personal information that we collect.

What is Dyax's contact address for privacy questions?
Should you have questions about this policy or Dyax's information collection, use and disclosure practices, you may contact us via email at the following address legal@dyax.com.  Alternatively you may send a letter to the following address:

Dyax Corp.
ATTN: Legal
55 Network Drive
Burlington, MA 01803-2756 USA
(617) 225-2500

If you would like to delete or amend your personal information and are contacting us by e-mail, please put "Deletion Request" or "Amendment Request" as applicable in the subject line of the email. We will use our best efforts to respond promptly to requests, questions or concerns you may have regarding our use of personal information about you. Except where required by law, Dyax cannot ensure a response to questions or comments regarding topics unrelated to this policy or Dyax's privacy practices.

Additional Aspects of Dyax's Privacy Policy:

Children's Privacy
Dyax does not knowingly use its website or other online tools to collect personally identifiable information or health-related personal information from children under the age of 16. If we learn that we have collected personally identifiable information through the Dyax website about a child under the age of 16 we will delete that information. If you are under the age of 16 and wish to register online to obtain further information or be included in an online survey, your parent or legal guardian must register. 

Links to Third Party Sites
The Dyax website may contain links to other websites on the Internet that are not under the control of or maintained by Dyax. Such links do not constitute an endorsement by Dyax of those other websites, the content displayed therein, or the persons or entities associated therewith. You acknowledge that Dyax is providing these links to you only as a convenience, and you agree that we are not responsible for the content of such websites. Your use of these other linked websites is subject to the respective terms of use and privacy policies located on the linked websites.

Right to know and opt-out
We reserve the right to send you specific notices about your account or to contact you if required by law. You may also receive, with your prior consent, periodic site newsletters by email. Additional information about our other services and products will be sent to you only if you have expressly chosen to receive such information. If you do not wish to receive site newsletters or additional information you may remove yourself from communication lists easily by contacting us at the following address:

Dyax Corp.
ATTN: Legal
55 Network Drive
Burlington, MA 01803-2756
USA
(617) 225-2500

Privacy Policy Updates
Dyax may need to update this Privacy Policy from time to time. If so, Dyax will post its updated Privacy Policy on our website located at www.dyax.com so users are always aware of what personally identifiable information we may collect and how we may use this information. We may also mail or email you a copy if appropriate. Dyax encourages you to review this Privacy Policy regularly for any changes.

Dated: January 12, 2010

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