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No question about it - life with hereditary angioedema (HAE) can be difficult for patients, as well as for the people who care about them.
Education about hereditary angioedema is critical. It is important that you and your family understand hereditary angioedema. This should include how hereditary angioedema is inherited and what may precipitate HAE attacks. You should also research what hereditary angioedema treatments are available and what to do in an emergency. This site is a great place to start!
This section will help you learn about how to live better with hereditary angioedema, including:
Register to receive free HAE genetic counseling, available for eligible patients and their families.
Eligible patients can get tested for HAE at no out-of-pocket cost.
HAE Attack Tracker™
The HAE Attack Tracker app allows you to easily track, record, and share information about your sudden HAE attacks on your iPhone®, iPad®, or iPod touch®.
Coping with Attacks
Tips to help you prepare for hereditary angioedema flare-ups.
The ways to reach out to others with hereditary angioedema using the Web.
Pregnancy & Childbirth
How pregnancy can affect your hereditary angioedema symptoms.
Learn about organizations and other resources that can help you live better with hereditary angioedema.
When Your Child Has HAE
Helping your child - and yourself - cope with hereditary angioedema.